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Employer Identification Number 36-3320440

FAMILIES OF SMA is a USA domiciled entity or foreign entity operating in the USA. The EIN ihas been issued by the IRS

Company Name:FAMILIES OF SMA
Employer identification number (EIN):36-3320440
EIN Issuing AuthorityCincinnati, OH
NAIC Classification:624100
NAIC Description: Individual and Family Services
401k Pension/Benefits registration FAMILIES OF SMA 401k plan information
Federal tax statusExempt from federal income tax. Registered as a non-profit under 501(c)(3) Title 26 of the United States Code
State of IncorporationTexas, TX

Organization Overview

Mission StatementCURE SMA LEADS THE WAY TO A WORLD WITHOUT SPINAL MUSCULAR ATROPHY, THE NUMBER ONE GENETIC CAUSE OF DEATH FOR INFANTS. CURE SMA FUNDS AND DIRECTS COMPREHENSIVE RESEARCH THAT DRIVES BREAKTHROUGHS IN TREATMENT AND CARE, AND PROVIDES FAMILIES THE SUPPORT THEY NEED FOR TODAY.
Number of Employees32
Number of Volunteers6600
Year Formed1984

Organization Governance

Legal DomicileIL
Voting Members - Governing Body14
Voting Members - Independent14

Organization Financials

2023-06-30
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 3,528,616
Program Service Revenue from current yearUSD $ 3,981,929
Investment Income from prior yearUSD $ 52,111
Investment Income from current yearUSD $ 85,789
Other Revenue from prior yearUSD $ 1,924,878
Other Revenue from current yearUSD $ 244,964
Gross receipts from all sourcesUSD $ 14,494,484
Net assets / fund balances at end of fiscal yearUSD $ 6,792,731
Net assets / fund balances at beginning of fiscal yearUSD $ 7,230,720
Total liabilities at end of fiscal yearUSD $ 5,920,573
Total liabilities at beginning of fiscal yearUSD $ 4,066,739
Total assets at end of fiscal yearUSD $ 12,713,304
Total assets at beginning of fiscal yearUSD $ 11,297,459
Revenues less expenses for current yearUSD $ -534,453
Revenues less expenses for previous yearUSD $ 838,942
Total expenses for current yearUSD $ 14,203,228
Total expenses for previous yearUSD $ 14,183,277
Other expenses in current yearUSD $ 5,737,821
Other expenses in previous yearUSD $ 6,421,471
Total fundraising expenses in current yearUSD $ 1,194,386
Professional fundraising fees from current yearUSD $ 0
Professional fundraising fees from previous yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 5,343,889
Employee salary and benefits paid in previous yearUSD $ 4,907,217
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 3,121,518
Grants and similar amounts paid in previous yearUSD $ 2,854,589
Total revenue in current fiscal yearUSD $ 13,668,775
Total revenue in previous fiscal yearUSD $ 15,022,219
Contributions and grants from current yearUSD $ 9,356,093
Contributions and grants from previous yearUSD $ 9,516,614
Gross income from fundraising eventsUSD $ 547,998
Total of other revenueUSD $ 87,572
2022-06-30
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 1,627,325
Program Service Revenue from current yearUSD $ 3,528,616
Investment Income from prior yearUSD $ 83,339
Investment Income from current yearUSD $ 52,111
Other Revenue from prior yearUSD $ 111,132
Other Revenue from current yearUSD $ 1,924,878
Gross receipts from all sourcesUSD $ 15,738,432
Net assets / fund balances at end of fiscal yearUSD $ 7,230,720
Net assets / fund balances at beginning of fiscal yearUSD $ 6,619,292
Total liabilities at end of fiscal yearUSD $ 4,066,739
Total liabilities at beginning of fiscal yearUSD $ 3,593,022
Total assets at end of fiscal yearUSD $ 11,297,459
Total assets at beginning of fiscal yearUSD $ 10,212,314
Revenues less expenses for current yearUSD $ 838,942
Revenues less expenses for previous yearUSD $ 348,676
Total expenses for current yearUSD $ 14,183,277
Total expenses for previous yearUSD $ 10,067,637
Other expenses in current yearUSD $ 6,421,471
Other expenses in previous yearUSD $ 2,878,817
Total fundraising expenses in current yearUSD $ 1,919,044
Professional fundraising fees from current yearUSD $ 0
Professional fundraising fees from previous yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 4,907,217
Employee salary and benefits paid in previous yearUSD $ 4,578,986
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 2,854,589
Grants and similar amounts paid in previous yearUSD $ 2,609,834
Total revenue in current fiscal yearUSD $ 15,022,219
Total revenue in previous fiscal yearUSD $ 10,416,313
Contributions and grants from current yearUSD $ 9,516,614
Contributions and grants from previous yearUSD $ 8,594,517
Gross income from fundraising eventsUSD $ 2,101,320
Total of other revenueUSD $ 139,055
2021-06-30
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 1,640,500
Program Service Revenue from current yearUSD $ 1,627,325
Investment Income from prior yearUSD $ 43,460
Investment Income from current yearUSD $ 83,339
Other Revenue from prior yearUSD $ 2,260,174
Other Revenue from current yearUSD $ 111,132
Gross receipts from all sourcesUSD $ 11,070,878
Net assets / fund balances at end of fiscal yearUSD $ 6,619,292
Net assets / fund balances at beginning of fiscal yearUSD $ 6,077,930
Total liabilities at end of fiscal yearUSD $ 3,593,022
Total liabilities at beginning of fiscal yearUSD $ 4,074,044
Total assets at end of fiscal yearUSD $ 10,212,314
Total assets at beginning of fiscal yearUSD $ 10,151,974
Revenues less expenses for current yearUSD $ 348,676
Revenues less expenses for previous yearUSD $ 963,534
Total expenses for current yearUSD $ 10,067,637
Total expenses for previous yearUSD $ 11,119,996
Other expenses in current yearUSD $ 2,878,817
Other expenses in previous yearUSD $ 3,810,585
Total fundraising expenses in current yearUSD $ 1,778,158
Professional fundraising fees from current yearUSD $ 0
Professional fundraising fees from previous yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 4,578,986
Employee salary and benefits paid in previous yearUSD $ 4,652,897
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 2,609,834
Grants and similar amounts paid in previous yearUSD $ 2,656,514
Total revenue in current fiscal yearUSD $ 10,416,313
Total revenue in previous fiscal yearUSD $ 12,083,530
Contributions and grants from current yearUSD $ 8,594,517
Contributions and grants from previous yearUSD $ 8,139,396
Gross income from fundraising eventsUSD $ 22,420
Total of other revenueUSD $ 159,814
2020-06-30
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 2,007,413
Program Service Revenue from current yearUSD $ 1,640,500
Investment Income from prior yearUSD $ 131,009
Investment Income from current yearUSD $ 43,460
Other Revenue from prior yearUSD $ 2,873,353
Other Revenue from current yearUSD $ 2,260,174
Gross receipts from all sourcesUSD $ 12,841,532
Net assets / fund balances at end of fiscal yearUSD $ 6,077,930
Net assets / fund balances at beginning of fiscal yearUSD $ 5,104,806
Total liabilities at end of fiscal yearUSD $ 4,074,044
Total liabilities at beginning of fiscal yearUSD $ 5,271,480
Total assets at end of fiscal yearUSD $ 10,151,974
Total assets at beginning of fiscal yearUSD $ 10,376,286
Revenues less expenses for current yearUSD $ 963,534
Revenues less expenses for previous yearUSD $ 197,165
Total expenses for current yearUSD $ 11,119,996
Total expenses for previous yearUSD $ 14,121,822
Other expenses in current yearUSD $ 3,810,585
Other expenses in previous yearUSD $ 5,936,984
Total fundraising expenses in current yearUSD $ 1,368,488
Professional fundraising fees from current yearUSD $ 0
Professional fundraising fees from previous yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 4,652,897
Employee salary and benefits paid in previous yearUSD $ 4,344,183
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 2,656,514
Grants and similar amounts paid in previous yearUSD $ 3,840,655
Total revenue in current fiscal yearUSD $ 12,083,530
Total revenue in previous fiscal yearUSD $ 14,318,987
Contributions and grants from current yearUSD $ 8,139,396
Contributions and grants from previous yearUSD $ 9,307,212
Gross income from fundraising eventsUSD $ 2,606,084
Total of other revenueUSD $ 31,591
2019-06-30
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 1,164,295
Program Service Revenue from current yearUSD $ 2,007,413
Investment Income from prior yearUSD $ 38,580
Investment Income from current yearUSD $ 131,009
Other Revenue from prior yearUSD $ -543,412
Other Revenue from current yearUSD $ 2,873,353
Gross receipts from all sourcesUSD $ 15,399,586
Net assets / fund balances at end of fiscal yearUSD $ 5,104,806
Net assets / fund balances at beginning of fiscal yearUSD $ 4,955,922
Total liabilities at end of fiscal yearUSD $ 5,271,480
Total liabilities at beginning of fiscal yearUSD $ 3,195,356
Total assets at end of fiscal yearUSD $ 10,376,286
Total assets at beginning of fiscal yearUSD $ 8,151,278
Revenues less expenses for current yearUSD $ 197,165
Revenues less expenses for previous yearUSD $ 1,770,925
Total expenses for current yearUSD $ 14,121,822
Total expenses for previous yearUSD $ 9,693,450
Other expenses in current yearUSD $ 5,936,984
Other expenses in previous yearUSD $ 3,831,350
Total fundraising expenses in current yearUSD $ 1,422,300
Professional fundraising fees from current yearUSD $ 0
Professional fundraising fees from previous yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 4,344,183
Employee salary and benefits paid in previous yearUSD $ 3,278,671
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 3,840,655
Grants and similar amounts paid in previous yearUSD $ 2,583,429
Total revenue in current fiscal yearUSD $ 14,318,987
Total revenue in previous fiscal yearUSD $ 11,464,375
Contributions and grants from current yearUSD $ 9,307,212
Contributions and grants from previous yearUSD $ 10,804,912
Gross income from fundraising eventsUSD $ 3,435,244
Total of other revenueUSD $ 45,183
2018-06-30
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 1,381,841
Program Service Revenue from current yearUSD $ 1,164,295
Investment Income from prior yearUSD $ 23,825
Investment Income from current yearUSD $ 38,580
Other Revenue from prior yearUSD $ 649,175
Other Revenue from current yearUSD $ -543,412
Gross receipts from all sourcesUSD $ 12,508,035
Net assets / fund balances at end of fiscal yearUSD $ 4,955,922
Net assets / fund balances at beginning of fiscal yearUSD $ 2,695,113
Total liabilities at end of fiscal yearUSD $ 3,195,356
Total liabilities at beginning of fiscal yearUSD $ 2,289,429
Total assets at end of fiscal yearUSD $ 8,151,278
Total assets at beginning of fiscal yearUSD $ 4,984,542
Revenues less expenses for current yearUSD $ 1,770,925
Revenues less expenses for previous yearUSD $ 307,259
Total expenses for current yearUSD $ 9,693,450
Total expenses for previous yearUSD $ 7,566,017
Other expenses in current yearUSD $ 3,831,350
Other expenses in previous yearUSD $ 4,120,956
Total fundraising expenses in current yearUSD $ 1,015,466
Professional fundraising fees from current yearUSD $ 0
Professional fundraising fees from previous yearUSD $ 2,500
Employee salary and benefits paid in current yearUSD $ 3,278,671
Employee salary and benefits paid in previous yearUSD $ 2,465,061
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 2,583,429
Grants and similar amounts paid in previous yearUSD $ 977,500
Total revenue in current fiscal yearUSD $ 11,464,375
Total revenue in previous fiscal yearUSD $ 7,873,276
Contributions and grants from current yearUSD $ 10,804,912
Contributions and grants from previous yearUSD $ 5,818,435
Gross income from fundraising eventsUSD $ 158,737
Total of other revenueUSD $ 15,895
2017-06-30
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 815,371
Program Service Revenue from current yearUSD $ 1,381,841
Investment Income from prior yearUSD $ -6,037
Investment Income from current yearUSD $ 23,825
Other Revenue from prior yearUSD $ 151,130
Other Revenue from current yearUSD $ 649,175
Gross receipts from all sourcesUSD $ 8,630,278
Net assets / fund balances at end of fiscal yearUSD $ 2,695,113
Net assets / fund balances at beginning of fiscal yearUSD $ 2,315,634
Total liabilities at end of fiscal yearUSD $ 2,289,429
Total liabilities at beginning of fiscal yearUSD $ 1,601,166
Total assets at end of fiscal yearUSD $ 4,984,542
Total assets at beginning of fiscal yearUSD $ 3,916,800
Revenues less expenses for current yearUSD $ 307,259
Revenues less expenses for previous yearUSD $ 242,242
Total expenses for current yearUSD $ 7,566,017
Total expenses for previous yearUSD $ 5,867,544
Other expenses in current yearUSD $ 4,120,956
Other expenses in previous yearUSD $ 2,875,998
Total fundraising expenses in current yearUSD $ 1,009,256
Professional fundraising fees from current yearUSD $ 2,500
Professional fundraising fees from previous yearUSD $ 24,159
Employee salary and benefits paid in current yearUSD $ 2,465,061
Employee salary and benefits paid in previous yearUSD $ 1,747,547
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 977,500
Grants and similar amounts paid in previous yearUSD $ 1,219,840
Total revenue in current fiscal yearUSD $ 7,873,276
Total revenue in previous fiscal yearUSD $ 6,109,786
Contributions and grants from current yearUSD $ 5,818,435
Contributions and grants from previous yearUSD $ 5,149,322
Gross income from fundraising eventsUSD $ 502,807
Cost of goods soldUSD $ 23,873
Gross sales of inventory assetsUSD $ 15,773
Total of other revenueUSD $ 650,533
2016-06-30
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 403,981
Program Service Revenue from current yearUSD $ 815,371
Investment Income from prior yearUSD $ 18,312
Investment Income from current yearUSD $ -6,037
Other Revenue from prior yearUSD $ 98,289
Other Revenue from current yearUSD $ 151,130
Gross receipts from all sourcesUSD $ 6,874,271
Net assets / fund balances at end of fiscal yearUSD $ 2,315,634
Net assets / fund balances at beginning of fiscal yearUSD $ 2,061,213
Total liabilities at end of fiscal yearUSD $ 1,601,166
Total liabilities at beginning of fiscal yearUSD $ 1,193,942
Total assets at end of fiscal yearUSD $ 3,916,800
Total assets at beginning of fiscal yearUSD $ 3,255,155
Revenues less expenses for current yearUSD $ 242,242
Revenues less expenses for previous yearUSD $ -158,620
Total expenses for current yearUSD $ 5,867,544
Total expenses for previous yearUSD $ 5,395,275
Other expenses in current yearUSD $ 2,875,998
Other expenses in previous yearUSD $ 2,466,129
Total fundraising expenses in current yearUSD $ 937,681
Professional fundraising fees from current yearUSD $ 24,159
Professional fundraising fees from previous yearUSD $ 18,809
Employee salary and benefits paid in current yearUSD $ 1,747,547
Employee salary and benefits paid in previous yearUSD $ 1,570,338
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 1,219,840
Grants and similar amounts paid in previous yearUSD $ 1,339,999
Total revenue in current fiscal yearUSD $ 6,109,786
Total revenue in previous fiscal yearUSD $ 5,236,655
Contributions and grants from current yearUSD $ 5,149,322
Contributions and grants from previous yearUSD $ 4,716,073
Gross income from fundraising eventsUSD $ 521,892
Cost of goods soldUSD $ 20,075
Gross sales of inventory assetsUSD $ 23,592
2015-06-30
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 381,031
Program Service Revenue from current yearUSD $ 403,981
Investment Income from prior yearUSD $ 3,452
Investment Income from current yearUSD $ 18,312
Other Revenue from prior yearUSD $ 26,540
Other Revenue from current yearUSD $ 98,289
Gross receipts from all sourcesUSD $ 5,532,109
Net assets / fund balances at end of fiscal yearUSD $ 2,061,213
Net assets / fund balances at beginning of fiscal yearUSD $ 2,224,455
Total liabilities at end of fiscal yearUSD $ 1,193,942
Total liabilities at beginning of fiscal yearUSD $ 1,155,939
Total assets at end of fiscal yearUSD $ 3,255,155
Total assets at beginning of fiscal yearUSD $ 3,380,394
Revenues less expenses for current yearUSD $ -158,620
Revenues less expenses for previous yearUSD $ 215,273
Total expenses for current yearUSD $ 5,395,275
Total expenses for previous yearUSD $ 4,835,421
Other expenses in current yearUSD $ 2,466,129
Other expenses in previous yearUSD $ 2,460,052
Total fundraising expenses in current yearUSD $ 1,172,480
Professional fundraising fees from current yearUSD $ 18,809
Professional fundraising fees from previous yearUSD $ 15,413
Employee salary and benefits paid in current yearUSD $ 1,570,338
Employee salary and benefits paid in previous yearUSD $ 1,355,302
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 1,339,999
Grants and similar amounts paid in previous yearUSD $ 1,004,654
Total revenue in current fiscal yearUSD $ 5,236,655
Total revenue in previous fiscal yearUSD $ 5,050,694
Contributions and grants from current yearUSD $ 4,716,073
Contributions and grants from previous yearUSD $ 4,639,671
Gross income from fundraising eventsUSD $ 201,715
Cost of goods soldUSD $ 17,615
Gross sales of inventory assetsUSD $ 18,317

Other Company Names associated with EIN

FAMILIES OF SPINAL MUSCULAR ATROPHY

Organization Addresses

The following addresses have been detected as associated with Tax Indentification Number 363320440

USA Location Address
925 BUSSE ROAD
ELK GROVE VILLAGE
IL
60007
Date first seen: 2007-07-01
Date last seen: 2024-07-31

Nearby companies/organizations

The following companies are located in the same ZIP code areas:

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