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Employer Identification Number 52-1871536

JOUBERT SYNDROME FOUNDATION is a USA domiciled entity or foreign entity operating in the USA. The EIN ihas been issued by the IRS

Company Name:JOUBERT SYNDROME FOUNDATION
Employer identification number (EIN):52-1871536
EIN Issuing AuthorityBrookhaven, NY
Federal tax statusExempt from federal income tax. Registered as a non-profit under 501(c)(3) Title 26 of the United States Code

Organization Overview

Mission StatementTO ADMINISTER A CONFERENCE FEATURING PHYSICIANS WHO ARE CONDUCTING JOUBERTSYNDROME RESEARCH AND TO PROVIDE HELPFUL INFORMATION TO PARENTS RAISING CHILDREN WITH JOUBERT SYNDROME.
Number of Employees0
Number of Volunteers23
Year Formed1994

Organization Governance

Legal DomicileMD
Voting Members - Governing Body16
Voting Members - Independent16

Organization Financials

2023-12-31
Gross receipts from all sourcesUSD $ 137,061
Net assets / fund balances at end of fiscal yearUSD $ 260,233
Net assets / fund balances at beginning of fiscal yearUSD $ 486,924
Contributions, Grants, Gifts etc from current yearUSD $ 84,640
Total revenueUSD $ 137,061
Grants and similar amounts paidUSD $ 1,126
Fees and other payments to independent contractorsUSD $ 10,948
Total of all other expensesUSD $ 349,823
Total of all expensesUSD $ 363,752
Net assets or fund balances at end of yearUSD $ -226,691
Gross sales of inventory assetsUSD $ 74
Gross profit/loss Sales of inventoryUSD $ 74
2022-12-31
Gross receipts from all sourcesUSD $ 52,346
Net assets / fund balances at end of fiscal yearUSD $ 486,924
Net assets / fund balances at beginning of fiscal yearUSD $ 473,055
Contributions, Grants, Gifts etc from current yearUSD $ 51,427
Total revenueUSD $ 52,346
Fees and other payments to independent contractorsUSD $ 13,991
Total of all other expensesUSD $ 23,397
Total of all expensesUSD $ 38,477
Net assets or fund balances at end of yearUSD $ 13,869
Gross sales of inventory assetsUSD $ 85
Gross profit/loss Sales of inventoryUSD $ 85
Total of other revenueUSD $ 834
2021-12-31
Total unrelated business incomeUSD $ 0
Net unrelated business incomeUSD $ 0
Program Service Revenue from prior yearUSD $ 0
Program Service Revenue from current yearUSD $ 0
Investment Income from prior yearUSD $ 0
Investment Income from current yearUSD $ 0
Other Revenue from prior yearUSD $ -2,823
Other Revenue from current yearUSD $ 1,030
Gross receipts from all sourcesUSD $ 163,968
Net assets / fund balances at end of fiscal yearUSD $ 473,055
Net assets / fund balances at beginning of fiscal yearUSD $ 413,450
Total liabilities at end of fiscal yearUSD $ 1,012
Total liabilities at beginning of fiscal yearUSD $ 1,836
Total assets at end of fiscal yearUSD $ 474,067
Total assets at beginning of fiscal yearUSD $ 415,286
Revenues less expenses for current yearUSD $ 59,605
Revenues less expenses for previous yearUSD $ 101,233
Total expenses for current yearUSD $ 104,363
Total expenses for previous yearUSD $ 67,907
Other expenses in current yearUSD $ 104,363
Other expenses in previous yearUSD $ 67,907
Total fundraising expenses in current yearUSD $ 6,799
Professional fundraising fees from current yearUSD $ 0
Professional fundraising fees from previous yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Employee salary and benefits paid in previous yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Benefits paid to or for members in previous yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 0
Grants and similar amounts paid in previous yearUSD $ 0
Total revenue in current fiscal yearUSD $ 163,968
Total revenue in previous fiscal yearUSD $ 169,140
Contributions and grants from current yearUSD $ 162,938
Contributions and grants from previous yearUSD $ 171,963
Cost of goods soldUSD $ 0
Gross sales of inventory assetsUSD $ 1,030
2017-12-31
Total unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 99,956
Investment Income from current yearUSD $ 150
Other Revenue from current yearUSD $ 8,147
Gross receipts from all sourcesUSD $ 229,628
Net assets / fund balances at end of fiscal yearUSD $ 229,542
Net assets / fund balances at beginning of fiscal yearUSD $ 229,619
Total liabilities at end of fiscal yearUSD $ 4,396
Total assets at end of fiscal yearUSD $ 233,938
Total assets at beginning of fiscal yearUSD $ 229,619
Revenues less expenses for current yearUSD $ 22,334
Revenues less expenses for previous yearUSD $ 26,851
Total expenses for current yearUSD $ 196,638
Total expenses for previous yearUSD $ 37,496
Other expenses in current yearUSD $ 196,638
Other expenses in previous yearUSD $ 37,496
Total fundraising expenses in current yearUSD $ 0
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 0
Total revenue in current fiscal yearUSD $ 218,972
Total revenue in previous fiscal yearUSD $ 64,347
Contributions and grants from current yearUSD $ 110,719
Contributions and grants from previous yearUSD $ 64,347
Cost of goods soldUSD $ 10,656
Gross sales of inventory assetsUSD $ 18,105
Total of other revenueUSD $ 698
2016-12-31
Total unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 0
Investment Income from current yearUSD $ 0
Other Revenue from prior yearUSD $ 273
Other Revenue from current yearUSD $ 0
Gross receipts from all sourcesUSD $ 64,347
Net assets / fund balances at end of fiscal yearUSD $ 229,619
Net assets / fund balances at beginning of fiscal yearUSD $ 202,768
Total liabilities at end of fiscal yearUSD $ 0
Total liabilities at beginning of fiscal yearUSD $ 256
Total assets at end of fiscal yearUSD $ 229,619
Total assets at beginning of fiscal yearUSD $ 203,024
Revenues less expenses for current yearUSD $ 26,851
Revenues less expenses for previous yearUSD $ 21,616
Total expenses for current yearUSD $ 37,496
Total expenses for previous yearUSD $ 112,453
Other expenses in current yearUSD $ 37,496
Other expenses in previous yearUSD $ 112,453
Total fundraising expenses in current yearUSD $ 0
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 0
Total revenue in current fiscal yearUSD $ 64,347
Total revenue in previous fiscal yearUSD $ 134,069
Contributions and grants from current yearUSD $ 64,347
Contributions and grants from previous yearUSD $ 133,796
2015-12-31
Total unrelated business incomeUSD $ 0
Program Service Revenue from current yearUSD $ 0
Investment Income from prior yearUSD $ 1
Investment Income from current yearUSD $ 0
Other Revenue from prior yearUSD $ 91
Other Revenue from current yearUSD $ 273
Gross receipts from all sourcesUSD $ 134,069
Net assets / fund balances at end of fiscal yearUSD $ 202,768
Net assets / fund balances at beginning of fiscal yearUSD $ 181,152
Total liabilities at end of fiscal yearUSD $ 256
Total liabilities at beginning of fiscal yearUSD $ 966
Total assets at end of fiscal yearUSD $ 203,024
Total assets at beginning of fiscal yearUSD $ 182,118
Revenues less expenses for current yearUSD $ 21,616
Revenues less expenses for previous yearUSD $ 34,080
Total expenses for current yearUSD $ 112,453
Total expenses for previous yearUSD $ 23,155
Other expenses in current yearUSD $ 112,453
Other expenses in previous yearUSD $ 23,155
Total fundraising expenses in current yearUSD $ 0
Professional fundraising fees from current yearUSD $ 0
Employee salary and benefits paid in current yearUSD $ 0
Benefits paid to or for members in current yearUSD $ 0
Grants and similar amounts paid in current yearUSD $ 0
Total revenue in current fiscal yearUSD $ 134,069
Total revenue in previous fiscal yearUSD $ 57,235
Contributions and grants from current yearUSD $ 133,796
Contributions and grants from previous yearUSD $ 57,143
Total of other revenueUSD $ 273

Other Company Names associated with EIN

Joubert Syndrome & Related Disorders Foundation
JOUBERT SYNDROME & RELATED
JOUBERT SYNDROME AND RELATED DISORDERS

Organization Addresses

The following addresses have been detected as associated with Tax Indentification Number 521871536

USA Mailing Address
414 HUNGERFORD DRIVE
Rockville
MD
20850
Date first seen: 2007-01-01
Date last seen: 2024-08-31
USA Mailing Address
1415 West Avenue
Cincinnati
OH
45215
Date first seen: 2007-01-01
Date last seen: 2024-08-31
USA Mailing Address
9 Dorenfeld Ct
Petaluma
CA
94952
Date first seen: 2009-04-01
Date last seen: 2024-08-31
USA Mailing Address
19520 BEACH CLIFF BLVD
ROCKY RIVER
OH
44116
Date first seen: 2007-01-01
Date last seen: 2024-06-30
USA Mailing Address
15411 STARLING CROSSING DR
LITHIA
FL
33547
Date first seen: 2010-01-01
Date last seen: 2024-10-25

EIN Events

Event Date Event description
2021-08-09Posting of automatic revocation of federal tax exempt status for not filing Form 990 return or notice for 3 consecutive years
2021-05-15Automatic revocation of federal tax exempt status for not filing Form 990 return or notice for 3 consecutive years
2021-05-15Reinstatement of federal tax exempt status following automatic revocation for not filing Form 990 return or notice for 3 consecutive years

Nearby companies/organizations

The following companies are located in the same ZIP code areas:

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